Tuesday, May 8, 2018

Live Well - May the Force Be with You

FREE for the whole family and every ability level! Enjoy healthy tips, Adaptive Jedi Training, photo ops with Star Wars characters, and Star Wars snacks.

Thursday, November 16, 2017

Santa for Super Kids 2017

This event was put on by Northern Utah Pediatrics and Families of Super Kids.

Thank you to Santa and Mrs. Clause for visiting our Super Kids! Santa and Mrs. Clause have a great love for children with special needs. This was a special night where families were able to come out before it gets too cold, avoid big crowds, and have some personal time visiting with Santa and the Misses. Children received a candy cane from Santa and if they could not eat candy, Santa gave them a special sensory toy. Families enjoyed the glow of lights, soft Christmas music, a...nd making sensory crafts while Santa and Mrs. Clause complimented their artwork and entertained with sleigh bells!
We had a wonderful turn out. Thank you, families who were able to make it. We wish families who were sick or otherwise busy a very wonderful, healthy holiday season.
(If you are a family who came and you do not see your photos, we do not have a media release and are happy to get one to you to share your photos.)

Thursday, October 26, 2017

Santa for Super Kids

Mrs. Clause will also be joining Santa to visit with children and families with special needs. Come enjoy a wonderful holiday event before it gets to cold!

Tuesday, September 12, 2017

"Communication is My Super Power" Conference

This conference is for the entire family with fun classes for kids, including those with special needs and amazing presentations for parents and professionals. This is the event you won't want to miss! Children are invited to dress up as super heroes. The topics apply to all families of children with special needs.

Monday, August 28, 2017

Supplemental Security Income for Children with Special Needs

For children with special needs who have a financial disadvantage, SSI may be an option of assistance. A recent contact at the SSI office informs that an approved SSI applicant will receive retro-payment from the date of application. Since this is the case, the earlier the application, the better. SSI funds may be used for shelter and basic necessities. After the child's basic necessities are taken care of, the money may be used to offset medical costs not covered by insurance. The beneficiary cannot have more than $2,000 in assets. Past SSI funds not used can count toward these assets. https://www.ssa.gov/pubs/EN-05-10076.pdf

Call the SSI office right away to see if your child qualifies within the income requirements.

For families who need a savings account not affecting SSI assets, families can open an Able Account. Financial Institutions offering Able Accounts are not currently in Utah, however, Utah families can still open an Able Account in another state.

Apply for SSI Disability for a Child

The application can be started online and must be finished by visiting the local SSI office. Use this SSI Interview Checklist to have everything prepared. Part of the checklist suggests to bring any doctor's notes you already have. The SSI office can contact your doctor's offices to gather additional records. To expedite the process, gather all possible medical and school records to have them ready. Some doctor's offices may have a printing fee. Typically, this is a reasonable amount. Some parents feel it is definitely worth making the process go more smoothly and quickly. When submitting your records, it may be helpful to place all of the diagnoses at the top or front to help the person reviewing to easily find what they need.

Wednesday, August 23, 2017

2017 Special Needs Support Conference

Our annual conference is Saturday, September 23, 2017. This year's theme is "Communication is My Super Power" and the entire family is invited to attend. The Super Sib Shop will be held again for siblings of children with special needs ages 7-12 with super fun activities provided by Allies with Families and Kai Shi of Ogden. We will also have an Amazing Kid's Class for children with special needs ages 0-18 as well as young siblings ages 0-6. Space is limited, so register today! We have some wonderful presenters coming, including Dr. Barhorst's sister, Annette Stanislav, a Speech Language Pathologist and Dyslexia expert from Texas. Come enjoy booths, great presenters, and meeting other super families. A light morning snack will be provided. Feel free to share with friends and family. This event is sure to please!

Friday, July 14, 2017

Adapted Sea Quest Field Trip

Image result for sea quest aquarium images

Thursday, July 20th, 1-4 p.m.
Layton Hills Mall
1201 N Hillfield Rd., Layton, UT

Bring your whole family to our Adapted Sea Quest Aquarium Field Trip! This will be a fun experience for our children with special needs. Sound will be turned down. Children are welcome to interact with any of the animals that have open tanks and cages. Families are encouraged to stay with the guided tours. Guided Tours at 1 p.m. and 2:30 p.m. The Birthday Room is reserved for any of our children and families who need a break from the commotion. Sea Quest is located across from Dick Sporting Goods in the Layton Hills Mall. 
RSVP at Families of Super Kids Facebook event or text "Sea Quest" and number of attendeees to 801.896.3608.
Tell the front desk that you are with Families of Super Kids for these discounted rates:
$6.50 Adults (12+), $5 Children (2-11), Free for ages 0-23 months

Friday, March 3, 2017

Eye Gaze Communication Class

For parents and caregivers of children with special needs who are non-verbal or who have difficulty being understood by others in the community. This technology has helped individuals with Autism, Rhett Syndrome, Cerebral Palsy, ALS, and Lennox Gastaut Syndrome, to name a few.
*Guest Speaker: Leigh Cooley, Utah Representative at My Tobii Dynavox
Come and learn how eye gaze communication can give your child a voice!

Friday, February 24, 2017

2017 Dependent with a Disability Form

It's tax season! Ask your child's school principal sign this form to claim an exemption on your taxes. In some situations, the form can be signed by a primary care physician. Read the instruction page for all situations.

Tuesday, December 27, 2016

Scottish Rites of Utah Helps Children Communicate

Speech and Language Therapy in Northern Utah
Non-profit organization
How Rite Care Centers Work with Children

3755 S. Washington Blvd. Suite 1-A
South Ogden, UT 84403

*Search Keywords: Autism, Developmental Delay, Speech Therapy, Traumatic Brain Injury, Special Needs, Communication

Saturday, December 10, 2016

Autism Insurance Coverage in Utah

Presentation at Family Support Conference, "The Magic of Being a Super Family,"
Saturday, August 13, 2016
Presenter: Jon Owen, Utah Autism Coalition
Videographer: Randy Ripplinger

This presentation is for all those who would like a replay of this information packed session. Special thanks for service provided by Jon Owen for presenting and allowing us to share this video and to Randy Ripplinger for producing the video.

Tuesday, November 8, 2016

3 Ways to Obtain an iPad for Your Child with Special Needs

1. Autism Speaks iPad Grants

Autism Speaks is thrilled to announce that this year, 685 iPad Airs will be awarded to financially disadvantaged people with autism. The application is now open!

Eligible applicants are individuals who:
  • Have been diagnosed with autism by a licensed professional
  • Reside in the United States
  • Have limited income and cannot afford to purchase an iPad

The timeline is below:
  • November 7: Online application opens at 6:00 a.m. EST
  • November 11: Application closes at 11:59 p.m. EST
  • November 15 - December 9: Review committee selects recipients
  • December 15: Recipients announced and iPads sent out!
Applications must be submitted by the person with autism, an immediate family member of the person with autism, or a licensed social worker or therapist. The Technology Grant Review Committee will review applications and select the iPad award recipients. All applicants selected to receive an iPad Air will be contacted by December 15. If selected, the iPad will be shipped via UPS directly to the address provided with the application. Others will receive an email informing them of their status. Please keep in mind that if you are helping clients apply, you need to fill out an application for each child, with their individual addresses listed. The iPads can only be awarded to individuals, not organizations or classrooms unfortunately.

You must create a login and further instructions will be provided.

Questions? Contact us at ipads@autismspeaks.org. Please note that emails will take up to 12 hours to receive a response, but every email will be answered! Also, we cannot accept applications from outside the United States.

2. Weber School Foundation Grants

Weber School Foundation has grants available for children who attend Weber School District or Ogden School District. You can request that your child's therapist or teacher apply on his or her behalf.
Instructions: Weber School Foundation Grants.

3. Insurance Companies and iPads

Some insurance companies will approve an iPad as an augmentitive communication device for an individual who has limited language or who is non-verbal. There is no guarantee that any insurance company will approve an iPad. Try anyway. It is worth trying!
  • Visit an approved provider speech therapist 
  • Request an AAC evaluation to make a plan for the best augmentative communication device
  • Depending on insurance, it might be approved
  • Some insurance companies give a trial period to see if the device is working for its intended use and reevaluate approval if the device is helping 

Thursday, July 14, 2016

Flight Risk Children with Special Needs

Author: Jeanette Pascoe

My daughter, Anna, has multiple special needs, including Autism. When she was a toddler through the time she was seven years old, she was a flight risk. At home, school, stores, parks, church, and parties, she would suddenly bolt with no explanation. Communicating with her and helping her learn that it was dangerous was extremely difficult. Anna is non-verbal, sensory seeking, and used to be quite a thrill seeker. When she had the urge to sprint somewhere, she would. She disappeared quickly and I had seconds to find her and catch up before she could be in the street or lost. She used to get out of bed multiple times a night. I trained my ears to hear the tiniest shuffle of her footsteps on our hard wood floors so I could leap out of bed and bring her back to safety. I was on constant high alert. Through the years, I learned how to advocate for her, I learned a highly effective therapy, and I learned several resources to aid parents with "runners."

Advocacy began with calling our city streets department to request a speed limit sign and an "Autistic Child at Play" sign. This would create a heightened awareness in our neighborhood and, hopefully, add some caution to how people drove near our home. This could buy me that extra two seconds to catch up with my little sprinter before she got to the street. The department placed 25 MPH speed limit signs one block from either side of our home. They felt that, although Autism is becoming more well-known, drivers may not process quickly enough how important it is to slow down near a child with Autism. They suggested placing a sign stating, "Deaf Child at Play," which more drivers would quickly understand as they pass by and hopefully be watching for running children. I agreed and was very grateful when they put the sign up in my park strip near the road. This, however, did not stop Anna's dangerous flight risk.

Anna began Applied Behavior Analysis (ABA) therapy at a premiere preschool for children with Autism. Up to that point, I had been so protective of her that I promptly let the teachers know they would need to close the door from the classroom to the play pod as well as the classroom door which led to the outdoor playground. They reassured me that this was how they ran their program and that they always keep the doors open. I even had the confidence to repeat myself, letting them know that she is a flight risk and that it would be very dangerous to keep those doors open. They again reassured me, telling me that they would teach her not to run. I left nervous and quite speculative.

Over the course of Anna attending the ABA program, Anna sprinted out those doors many times. The teachers let me know every time she ran. They were always right behind her to bring her back and keep her safe.

I came back a week later to volunteer and Anna's teacher took me aside to show me how they were training Anna to stop. They showed me a large laminated paper stop sign thoroughly taped to the floor before each exit. When Anna ran out either of the doors, the teacher took her by the hand and led her back to the classroom saying, "Anna, you need to stop." She then had Anna walk from one end of the classroom all the way to the side where she ran out the door. She helped Anna touch the stop sign on the floor by the exit saying, "Anna, stop." The teacher took time to do this ten times per one time that Anna ran, taking her to the other end of the classroom, back to the stop sign, and helping her touch the sign. Anna's teacher did this every. single. time.

After two weeks, Anna ran away less. I started receiving notes that in mid-sprint, the teachers would say, "Anna, stop," and she actually stopped! A month went by and we saw even more improvement. After two months, Anna completely stopped running out of her classroom door. I was astounded.

So much relief came over me, however, Anna continued to run in other environments like from our yard to the street. It made my heart jump into my throat every time. She was so incredibly fast. I decided, "Well, the therapy at school worked, so I have to do it at home." It would be a lot of work. I completely committed. It would be easier to do this therapy than to watch my precious little girl get hurt someday.

I placed a stop sign at the end of my driveway before the sidewalk on the ground. Every day, I did a session of ten trials, helping Anna walk from our backyard all the way to the stop sign, touch the stop sign while saying, "Anna, stop." Back and forth, we went. After a month of hard work, one day she ran toward the street and I called, "Anna, stop." She actually stopped.

Our children with special needs and autism know more than we think they know. They process information differently. Anna was listening. She was learning. She had to learn a different way where her boundaries stood...and the important thing is - she did it!

As I have connected with many special needs families, I see a high need of safety supports for flight risk children. There are many resources available today that were not around when Anna was my little sprinter. As we share this great information, I hope we see more peace of mind uplift our amazing families.

-Link provided by Autism Speaks

Thursday, June 16, 2016

Free Summer Activities for Families in Weber County


Each year, the Weber County RAMP grant funds free family activities during the summer. The community partners providing these activities are increasing. Most of these activities are adaptable to children and individuals with special needs.

Friday, June 10, 2016

Prescription Discount Card

A lot of our families with children or adults with special needs struggle with the cost of prescription medications. Utah Family Voices shared this resource with us. It is a "NeedyMeds Drug Discount Card" which advertises a savings of up to 80% on prescriptions. The website, www.needymeds.org, also has free information on over 5,000 programs. Check out the card at this hyperlink:
NeedyMeds Drug Discount Card
Toll-Free Helpline: 800.503.6897
Email: info@needymeds.org

Wednesday, April 27, 2016

Children's Mental Health Awareness Week

Special Needs Adapted Zoo Classes

From Utah Hogle Zoo:
"My name is Elise Kelly and I run the special needs programs “Zoo Just for You” and “Zoo Just for Little You” at Utah’s Hogle Zoo. Coming up on Saturday, May 14 is our next early intervention preschool class, “Colorful Crawlies” in which we will learn about invertebrates and colors. The class is developed in partnership with DDI Vantage and is targeted for children ages 2-5 who are working on developmentally appropriate milestones. Cost is $10 per student and includes an accompanying adult. Class will be held from 9:30-11 a.m., and will include visits from live animals and a short guided visit in the Zoo. All students must register online at least seven days in advance. Registration information can be found online atwww.hoglezoo.org/zoojustforlittleyou."

Thursday, March 10, 2016

Accepting Your Reality

Join Easy to Love for a presentation on
Accepting Your Reality
 presented by Emil Harker, MS, LMFT.  

Date: March 16th
Time: 7:00-8:15PM
Place: Utah Behavior Services
189 South State Street Suite 222

Please RSVP by emailing Lindsay@UtahEasyToLove.org
Child Care available, you must also reserve a spot in advance ($6/child)
limited spaces.

For more information on Emil, visit emilharker.com

Conexiones Familiares

Spread the word! The Utah Parent Center is having a Spanish Family Links Conference April 16, 2016. Special Education, Effective Communication, Section 504, Transition to Adulthood and Behavior Workshops will be presented. Please inform any Spanish Speaking parents that you know can benefit from this information. 
Entrance will be FREE of charge! Lunch included!
Conexiones Familiares
Saturday April 16, 2016 from 8:30 AM to 4:00 PM MDT

Add to Calendar
Utah Parent Center
230 W. 200 S. Suite 1101

Salt Lake City, UT 84101

Driving Directions

Estimados Padres, 
Esta cordialmente invitado a nuestra conferencia anual de Conexiones Familiares.  
¡Entrada es Gratis!
16 de abril del 2016
Temas a tratar:
  Transición a la Vida Adulta
La Comunicación Efectiva
El Comportamiento
Educación Especial
Sección 504
También tendremos una amplia feria de exposiciones de recursos en la comunidad
como también tendremos premios por sorteo.
Se servirá almuerzo (lunch)
Utah Parent Center
230 W 200 S, Suite 1101
Salt Lake City, UT,  84101
No habrá guardería
Regístrese lo más pronto posible 
llamando al (801) 272-1067 : 
La conferencia Conexiones Familiares esta patrocinando por  el Centro Padres de Utah, Allies with Families, Autism Council of Utah, CHADD of Utah, Division of Services for People with Disabilities, Easter Seals Goodwill Northern Rocky Mountain,  Family to Family Network, Fetal Alcohol Coalition, Learning Disabilities Association of Utah, Utah Deafblind Project, Utah Developmental Disabilities Council, Utah Down Syndrome Foundation, Utah Family Voices, Utah Prader Willi Syndrome Association, Utah PTA,  Utah State Office of Education and Utah State Office of Rehabilitation.
Esperanza Reyes y Patricia Vigo
Utah Parent Center