The Family Support Center of Ogden (FSCO) is one place local families can take their children for childcare and a short break. Whether a parent needs to run to the grocery store or take a child to the doctor without having to bring the rest of their otherwise healthy children, the support center can be a source of relief to families undergoing stress.
FSCO began advocating for children in foster care and preventing child abuse. In addition to protecting children, the organization wanted to be a driving force in avoiding costs the state could incur due to the after effects of child abuse. The center offers a variety of supports, but one way they saw an opportunity to help families was to offer short periods of childcare for up to two hour intervals, so that a family would not feel such an intense pressure of their circumstances.
This service has expanded to assisting any local family who qualifies and fills out some brief paperwork at the center. FSCO even offers support to some families of children with special needs. The center is not trained or equipped to handle critical health care needs, such as g-tube feeding or monitoring oxygen. They have, however, provided childcare for children with autism. The two hour break can be provided during normal business hours during the week and many local families have found this to be exactly what they needed to get through a trying time.
Have you ever dreaded going to the grocery store because your child throws tantrums? Use FSK to help. Having food in your home when your family needs it is important, especially if you have a child with special needs. Do you avoid going to the doctor because you do not want to take all of your children and do not have other options? Use this resource. It will help you concentrate on the health of your children. Is your marriage under stress and perhaps it would be nice to have a lunch date, but there is no one to ask to take your children? FSCO can be a source of respite. It will help to relieve your family and may help you avoid building stresses. Family Support Center of Ogden strengthens families and the community.
Family Support Center of Ogden
Family Support Center of Ogden, Inc. | 3340 S Harrison Blvd, Suite 110 | Ogden, Utah 84403
Phone: 801-393-3113 | Fax: 801-394-1910 | Email: fscofogden@aol.com
Article by Jeanette Pascoe
Wednesday, August 6, 2014
Wednesday, June 18, 2014
Special Needs - Not Always Black and White
Family Support Clinic: Thursday, August 14th, 6-8 p.m.
McKay Dee Hospital, Education Center
Save this very important date for a fabulous clinic with various presenters who will speak directly to your heart. Northern Utah Pediatrics is partnering with Families of Super Kids to host this special event.
Wednesday, June 4, 2014
Seizure Smart Conference THIS SATURDAY
7th Annual Get Seizure Smart! Educational Conference
http://epilepsyut.org/conference2014.html
Press Release with additional information below:
_______________________________________________________________________________
For Immediate Release
Epilepsy Association of Utah Announces
“Seizure Smart” Education Conference
SALT LAKE CITY – Monday, May 19, 2014
The Epilepsy Association of Utah (EAU) announces its annual “Get Seizure Smart!” Epilepsy Education Conference, presenting the latest in epilepsy science and treatment options, as well as tools and resources for those affected by epilepsy. The “Seizure Smart” conference will be held Saturday, June 7, 2014 from 8 a.m. to 4 p.m. at Little America Hotel, 500 South Main Street, Salt Lake City. Individuals with epilepsy, families of those affected, medical personnel, educators, and first responders, as well as the general public, are invited to attend.
Dr. Ian Miller, pediatric neurologist at Miami Children’s Hospital, international expert in treating Dravet syndrome and member of the Dravet Syndrome Foundation’s Professional Advisory Board, will be the keynote speaker and special guest. He is scheduled to discuss the discovery of genetics in epilepsy and the push for research into CBD-based treatment options.
The conference will feature breakout sessions with renowned experts presenting on topics including the complexities of epilepsy, genetics of epilepsy, latest treatment options, alternative therapies, coping and advocacy, managing behaviors and sibling behaviors, mental health, trusts and living wills and patient resources. Several organizations and vendors will be in attendance with tables providing helpful information, a few of which include the Division of Services for People with Disabilities, Hope 4 Children With Epilepsy, Utah Kids, Utah Parent Center, Autism Council of Utah and Brain Balance Centers.
With the recent passage of HB105 “Charlee’s Law” allowing for the possession of high-CBD/low-THC cannabis oil for the treatment of intractable epilepsy in adults and children, the EAU will present the specifics of the new Hemp Extract Registration Program and the safe and effective use of the therapy. Jennifer May, co-founder of Hope 4 Children With Epilepsy, the EAU’s parent advocacy group who lobbied in favor of the bill, will be walking patients through the details of the law and the processes required to gain access to approved extracts for treatment. As the leading provider of high-CBD/low-THC cannabis oil, Realm of Caring’s own Heather Jackson will present information about the oil as a treatment for intractable epilepsy. Realm of Caring is a non-profit organization in Colorado who oversees the cultivation of the Charlotte’s Web plant and its processing and distribution as Alepsia, a non-psychoactive extract infused in oil.
“Our goal with the Seizure Smart Epilepsy Conference is to provide those affected by epilepsy with the tools needed to educate themselves, as well as those around them, and obtain the best treatments possible, whether they be mainstream or alternative,” said April Sintz, EAU Conference Chairperson and H4CE leadership member. “We want to empower people by giving them choices and resources that are available to all of us here in the state of Utah,” Sintz stated.
Cost for the conference is $30 for the public ($15 for EAU members) if registered in advance; an additional $10 charge will apply for those registering at the door. A light breakfast, a catered lunch, and a “loot bag” will be provided for each attendee. Registration is open on the EAU website at
http://epilepsyut.org/conference2014.html.
#####
ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, the Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life
for all individuals living with epilepsy and seizure disorders. One in 26 people will develop epilepsy at some time in
their lives, totaling over 100,000 people in Utah alone. Epilepsy is the fourth most common neurological disorder
in the US, after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education
program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits,
educational conferences, summer camp and more. Visit http://epilepsyut.org for additional information.
Media Contact: Jennifer Hardy May
Email: info@epilepsyut.org
Website: www.epilepsyut.org
"The Epilepsy Association of Utah is pleased to announce that we have been gifted 16 tickets to conference. If you wanted to attend, but the cost was restrictive, please email conference@epilepsyut.org letting us know you are interested by giving us your name and your guests' name (if needed). Limit of 2 free tickets per household. See you Saturday!"June 7th, 2014
8am to 4pm
Little America
500 S Main St
Salt Lake City, UT
84101
http://epilepsyut.org/conference2014.html
Press Release with additional information below:
_______________________________________________________________________________
For Immediate Release
Epilepsy Association of Utah Announces
“Seizure Smart” Education Conference
SALT LAKE CITY – Monday, May 19, 2014
The Epilepsy Association of Utah (EAU) announces its annual “Get Seizure Smart!” Epilepsy Education Conference, presenting the latest in epilepsy science and treatment options, as well as tools and resources for those affected by epilepsy. The “Seizure Smart” conference will be held Saturday, June 7, 2014 from 8 a.m. to 4 p.m. at Little America Hotel, 500 South Main Street, Salt Lake City. Individuals with epilepsy, families of those affected, medical personnel, educators, and first responders, as well as the general public, are invited to attend.
Dr. Ian Miller, pediatric neurologist at Miami Children’s Hospital, international expert in treating Dravet syndrome and member of the Dravet Syndrome Foundation’s Professional Advisory Board, will be the keynote speaker and special guest. He is scheduled to discuss the discovery of genetics in epilepsy and the push for research into CBD-based treatment options.
The conference will feature breakout sessions with renowned experts presenting on topics including the complexities of epilepsy, genetics of epilepsy, latest treatment options, alternative therapies, coping and advocacy, managing behaviors and sibling behaviors, mental health, trusts and living wills and patient resources. Several organizations and vendors will be in attendance with tables providing helpful information, a few of which include the Division of Services for People with Disabilities, Hope 4 Children With Epilepsy, Utah Kids, Utah Parent Center, Autism Council of Utah and Brain Balance Centers.
With the recent passage of HB105 “Charlee’s Law” allowing for the possession of high-CBD/low-THC cannabis oil for the treatment of intractable epilepsy in adults and children, the EAU will present the specifics of the new Hemp Extract Registration Program and the safe and effective use of the therapy. Jennifer May, co-founder of Hope 4 Children With Epilepsy, the EAU’s parent advocacy group who lobbied in favor of the bill, will be walking patients through the details of the law and the processes required to gain access to approved extracts for treatment. As the leading provider of high-CBD/low-THC cannabis oil, Realm of Caring’s own Heather Jackson will present information about the oil as a treatment for intractable epilepsy. Realm of Caring is a non-profit organization in Colorado who oversees the cultivation of the Charlotte’s Web plant and its processing and distribution as Alepsia, a non-psychoactive extract infused in oil.
“Our goal with the Seizure Smart Epilepsy Conference is to provide those affected by epilepsy with the tools needed to educate themselves, as well as those around them, and obtain the best treatments possible, whether they be mainstream or alternative,” said April Sintz, EAU Conference Chairperson and H4CE leadership member. “We want to empower people by giving them choices and resources that are available to all of us here in the state of Utah,” Sintz stated.
Cost for the conference is $30 for the public ($15 for EAU members) if registered in advance; an additional $10 charge will apply for those registering at the door. A light breakfast, a catered lunch, and a “loot bag” will be provided for each attendee. Registration is open on the EAU website at
http://epilepsyut.org/conference2014.html.
#####
ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, the Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life
for all individuals living with epilepsy and seizure disorders. One in 26 people will develop epilepsy at some time in
their lives, totaling over 100,000 people in Utah alone. Epilepsy is the fourth most common neurological disorder
in the US, after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education
program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits,
educational conferences, summer camp and more. Visit http://epilepsyut.org for additional information.
Media Contact: Jennifer Hardy May
Email: info@epilepsyut.org
Website: www.epilepsyut.org
Thursday, April 17, 2014
Northern Utah Dance Class for Children with Special Needs
Friend to Friend
Julie Bouck, a PCMC physical therapist in Ogden, teaches a dance class to children with special needs. One of our former parent partners, Kim Schneider, who immensely contributed to the support of our super kids, danced with Julie for fifteen years. The class is free to all children, ages three to fifteen that have a disability.Information contributed by Kim Schneider:
"The class is at the Centerpoint Legacy Theater in Centerville on Fridays from 4:15 to 5. There is no limit to the disability either. She has had kids in wheelchairs that teachers or other kids help move the wheelchair to the beat of the music and they love it."
801-425-9546
After School Program in Ogden for Children with Special Needs
|
Thursday, March 27, 2014
Autism Resources for Northern Utah
There is a growing need for autism resources in Northern Utah. Here is a compiled list of helpful organizations and online links. Let us know what you think and feel free to add to the list!
PCMC Neurobehavioral Clinic
Northern Utah
801-292-8665
PCMC provides diagnostic evaluations, neuropsychological assessment, home programs, behavior management, and medication consultations
Families
of Super Kids
Autism
Resources
Families
of Super Kids
Click
on Northern Utah Summer Programs or
Click
on Year Round Programs
Primary
Children’s Rehab Ogden
801-387-2080
Occupational
Therapy
Diane
Peake
charterschoolot@gmail.com
801-644-4212
Home
consultations available in Layton to Ogden area
Clearfield
Aquatic Center
Special
Needs Swimming Lessons
801.525.4640
Facebook
Pages:
Big
MAK’S
Utah
Kids
Utah
Medical Supply Exchange
Northern
Utah Autism Program (NUAP): 801-394-5936
Early
Intervention Specialized for Autism, ABA Program
Children
with Special Health Care Needs: Ogden 801-626-3645
Utah
Center for Asistive Technology (UCAT)
Helping
people with disabilities identify and obtain assistive technology that will
enhance the quality of their lives.
801-887-9380
888-866-5550
1595
West 500 S
SLC,
Utah 84104
Service
Dogs:
Canine
Companions for Independence (CCI)
Wasatch
Champions
Inquiries
and requests: mailto:wasatchchampions77@yahoo.com
Utah
Parent Center
230
West 200 South, Suite 1101
Salt Lake City, UT 84101
Phone: 801.272.1051
Toll-Free in Utah: 1.800.468.1160
Email: info@utahparentcenter.org
Salt Lake City, UT 84101
Phone: 801.272.1051
Toll-Free in Utah: 1.800.468.1160
Email: info@utahparentcenter.org
Easter Seals
Easter Seals-Goodwill Northern Rocky Mountain is a
private, nonprofit organization serving children and adults with autism and
other disabilities, along with disadvantaged families in Idaho, Montana, Utah
and Wyoming.
PCMC Neurobehavioral Clinic
Northern Utah
801-292-8665
PCMC provides diagnostic evaluations, neuropsychological assessment, home programs, behavior management, and medication consultations
Disability
Law Center
Free
consultations
Autism
Speaks
Behavioral
Modification:
Behavior
Stories
http://www.thewatsoninstitute.org/teacher-resources2.jsp?pageId=2161392240601226415747290
Thursday, March 6, 2014
Eagle Eyes Aids Nonverbal Children
Op-Ed Article by Jeanette Pascoe
Family Partner, Northern Utah Pediatrics
Medical Home Project
EagleEyes, offered by The Opportunity Foundation of America, is an eye controlled technology and program that acts as a mouse for adults and children with disabilities. By taping electrodes to the user's temples and connecting the electrodes to the technology box, an individual can control their computer screen.
Wow. So many times, I have thought, "I know my kid is in there. She just can't control her hands or speak." One of the only things in her environment she controls is when she finds a string and plays with it. I want more for her.
I have not had my daughter try EagleEyes, yet I intend to do so very soon. Just imagine my daughter, a twelve year old who is non-verbal and has limited motor function, playing a game on a computer screen with her eyes. She would be able to look at a small area of the screen for a moment which results in a mouse click. My daughter would not even need to hold her head still. Awesome feature, especially since she sways back and forth. She could even use her head movement to control the device to play with many computer programs or the internet.
Through a grant, EagleEyes is available for only $800 during 2014. The Opportunity Foundation of America, a non-profit, only asks for a donation to cover the cost of the system and training. That is pretty amazing considering that it is normally $1200, considering the start up cost for the company as well as the development of the technology. There is even a possibility that Utah DSPD through Medicaid could cover the cost. Let's hope. I am convinced that the makers, INOVAR, Inc. want to help people improve their quality of life.
To obtain EagleEyes, schedule a free evaluation.
Phone: 385.215.9605
Email: info@ofoa.net
Online: www.ofoa.net
Family Partner, Northern Utah Pediatrics
Medical Home Project
EagleEyes, offered by The Opportunity Foundation of America, is an eye controlled technology and program that acts as a mouse for adults and children with disabilities. By taping electrodes to the user's temples and connecting the electrodes to the technology box, an individual can control their computer screen.
Wow. So many times, I have thought, "I know my kid is in there. She just can't control her hands or speak." One of the only things in her environment she controls is when she finds a string and plays with it. I want more for her.
I have not had my daughter try EagleEyes, yet I intend to do so very soon. Just imagine my daughter, a twelve year old who is non-verbal and has limited motor function, playing a game on a computer screen with her eyes. She would be able to look at a small area of the screen for a moment which results in a mouse click. My daughter would not even need to hold her head still. Awesome feature, especially since she sways back and forth. She could even use her head movement to control the device to play with many computer programs or the internet.
Through a grant, EagleEyes is available for only $800 during 2014. The Opportunity Foundation of America, a non-profit, only asks for a donation to cover the cost of the system and training. That is pretty amazing considering that it is normally $1200, considering the start up cost for the company as well as the development of the technology. There is even a possibility that Utah DSPD through Medicaid could cover the cost. Let's hope. I am convinced that the makers, INOVAR, Inc. want to help people improve their quality of life.
To obtain EagleEyes, schedule a free evaluation.
Phone: 385.215.9605
Email: info@ofoa.net
Online: www.ofoa.net
Saturday, March 1, 2014
Parenting Children with ADHD
Notes from presenter Melanie Hatch
Coordinator, CHADD of Utah
Navigating life with ADHD can be complex and emotional. Thankfully, there are some great tools that will help children and families with ADHD function happily.
Have your children help make the rules, make the consequences, and post the rules in multiple places throughout the house if you want them to remember. Help your children go at their pace. Don't rush them.
Children with ADHD need to develop problem solving skills. Sometimes children get stuck, so give them options on how to do the task. There are always different routes.
Give your child immediate feedback. Review strategies on how to manage ADHD, so that it's not just about a misbehavior. Help them see when they are doing something right. Every time your child is doing something right, reinforce that. Whether it is a sticker sheet, a reward at the end of a period of multiple tasks, or a compliment, help them build confidence in the things they do right.
When you wonder why your child is not doing what you want them to do, it may be that they didn't hear you. They may have been distracted for a moment. Talk to your child face to face. Observe if they are absorbing what you are saying and if they seem distracted, have them repeat it back to you. When you need to correct them, do it quietly with a gentle touch on the arm or a pep talk in private. Be sure to not embarrass them.
Your instruction should be clear with individual steps. For example, take a picture of what their room needs to look like when they clean it. Your child may need a picture for each step. When your child with ADHD is working, let them do it in short segments. They can come back to their tasks. Sometimes we need to praise them for partial finishing, for the little things. Reward them for improvement, not perfection. Children with ADHD are consistently inconsistent. They may not remember the rules and may need help navigating the same task multiple times, even if they did it right a few times before. Always help them see the positive.
ADHD is a physiological condition. When deciding if a child needs medication, realize that it is the choice of the parent and the child. Talk with your doctor and research medications. A teacher should not say the a child must be medicated. Usually, a medication could help a child calm down enough to learn.
There can be several issues for parents of children with ADHD. Parents may have the same condition. Parents have to deal with multiple issues like work, sports, schools, other children, and keeping a clean home. Parents may get negative messages from neighbors or schools that the parenting needs to improve, however, this may not be the case. If a parent struggles with their child's issues, try to not be at odds with your child. Show unconditional love. Mothers may often get depressed because they want to fix the problems, but celebrating one's own strengths is important as a parent.
There is hope for your child with ADHD. Solutions for the child include consistency from both parents and follow through with consequences. Make sure consequences are for the non - negotiable rules such as if a behavior hurts others or self. Clarify your expectations. Use enforceable statements without anger. Try not to use a consequence like, "If you don't clean your room, you are grounded for a month." Statements like that end up grounding the parent. Delay consequences if you or the child are emotional. Wait for five minutes to calm down.
Maintain a sense of humor! Ignore the small behaviors that don't make a big difference. Ask yourself if it really matters. Learn to laugh through difficult situations. Keep a disability perspective because a child with ADHD may look normal, yet needs the extra tools. They may have a 30 percent emotional and developmental delay. Learn where your child levels exist. Remember that parenting is not easy and simultaneously be grateful for the small victories your child makes.
Improving Brain Placicity
Notes from presenter Dr. Judy Gooch
judith.gooch@imail.org
Many individuals with disabilities, individuals with brain injury, or people with mental illness can benefit from activities which improve brain placicity. Activity improves brain placicity. This applies to cognitive function, emotional function, and motor function.
The most effective way to learn a task is to practice it on a daily basis in the home and in a community setting. The individual needs to practice a lot, yet with rest periods. Start with simple tasks that are variable. For instance, if a child is learning to walk, using a walker is good as long as that is not the constant. The child needs to practice a sitting position to standing position, practice walking fast, and practice walking slowly.
Use positive reinforcement. Brain placicity changes when using objects that stimulate. When a child is learning motor function in feeding themselves, they will most likely perform at a higher level if they are eating a bowl of ice cream! Find some motivators that your child loves, for example - toys, TV, or hugs. Motivators work the best when there is a highly desired object reserved for a specific task. For instance, if a child needs to learn to have eye contact and wants to work for obtaining a favorite toy car, the toy car is rewarded only in that situation, rather than at random requests throughout the day. This way, the child will learn that if they want their favorite toy car, they must have good eye contact.
Daily interactions are the most important therapy to improving brain placicity. A parent doesn't have to spend three hours doing therapy for their child. Two minutes can make a significant difference. Have them put dishes in the dishwasher, listen to music, or throw a bunch of balls in the backyard and have your child pick them up. Take your child for a jog in a specialized stroller, read to them, or have them help you cook. Any stimulation helps. Use what you normally do as daily activities in your home.
Sometimes the goal is about maintaining function, depending on the abilities of the child. Choose your battles. Pick realistic goals and realize that although variation is important to build brain placicity, it is also important to have some constants so that the child can remember what they have learned. Come back to learned motor skills in order to master them.
Look to resources in your area. Swimming is an excellent way to improve motor function and brain placicity, especially if the exercises change. Have your child try adaptive skiing or adaptive bicycling. Check with your school, state services, or medicaid to see if your child qualifies for occupational therapy. Keep your child engaged and moving on a schedule each day.
Resources:
Wasatch Adaptive Sports
http://wasatchadaptivesports.org/
National Ability Center
http://www.discovernac.org/
judith.gooch@imail.org
Many individuals with disabilities, individuals with brain injury, or people with mental illness can benefit from activities which improve brain placicity. Activity improves brain placicity. This applies to cognitive function, emotional function, and motor function.
The most effective way to learn a task is to practice it on a daily basis in the home and in a community setting. The individual needs to practice a lot, yet with rest periods. Start with simple tasks that are variable. For instance, if a child is learning to walk, using a walker is good as long as that is not the constant. The child needs to practice a sitting position to standing position, practice walking fast, and practice walking slowly.
Use positive reinforcement. Brain placicity changes when using objects that stimulate. When a child is learning motor function in feeding themselves, they will most likely perform at a higher level if they are eating a bowl of ice cream! Find some motivators that your child loves, for example - toys, TV, or hugs. Motivators work the best when there is a highly desired object reserved for a specific task. For instance, if a child needs to learn to have eye contact and wants to work for obtaining a favorite toy car, the toy car is rewarded only in that situation, rather than at random requests throughout the day. This way, the child will learn that if they want their favorite toy car, they must have good eye contact.
Daily interactions are the most important therapy to improving brain placicity. A parent doesn't have to spend three hours doing therapy for their child. Two minutes can make a significant difference. Have them put dishes in the dishwasher, listen to music, or throw a bunch of balls in the backyard and have your child pick them up. Take your child for a jog in a specialized stroller, read to them, or have them help you cook. Any stimulation helps. Use what you normally do as daily activities in your home.
Sometimes the goal is about maintaining function, depending on the abilities of the child. Choose your battles. Pick realistic goals and realize that although variation is important to build brain placicity, it is also important to have some constants so that the child can remember what they have learned. Come back to learned motor skills in order to master them.
Look to resources in your area. Swimming is an excellent way to improve motor function and brain placicity, especially if the exercises change. Have your child try adaptive skiing or adaptive bicycling. Check with your school, state services, or medicaid to see if your child qualifies for occupational therapy. Keep your child engaged and moving on a schedule each day.
Resources:
Wasatch Adaptive Sports
http://wasatchadaptivesports.org/
National Ability Center
http://www.discovernac.org/
Dual Diagnosis
Dual diagnosis can be very complex and overwhelming. Look at the big picture from birth through the child's life. Use your child's entire team to help make decisions. This team can consist of doctors, parents, support coordinators, teachers, family, friends, behavioralists, pharmasists, and more. Your input as a parent is critical because you provide the constant care and environment for your child. Ask questions on why your team members would like to make decisions from prescriptions to tests to goals at school. The team approach is fundamental.
The one thing you can count on with individuals with dual diagnosis is that there will be constant change. When a change in health or behavior happens, be thorough. The new issue may be due to an underlying issue. It could be a stressor from school, a UTI, a change in thyroid levels, an ear infection, sensory processing difficulties, etc. Look at the antecedents to what is happening. Often the issues are due to a change in routine or a change to their environment. Did your family move a month before it started? Did the child's diet recently change?
The next step is to look at changing behavior by working with a social worker or behavioralist. Look at motivators, preferably non food motivators. Take one behavior at a time. One method is to give the child a sticker on a chart for doing the behavior correctly. Once the child gets a certain number of stickers, they can receive a reward or positive reinforcement. Try to filter stimulants that distract the child.
If caregivers are working with medications, try one at a time and take brief notes of how they react. Give each med at least two weeks. "Start low, go slow." Sometimes a child on multiple meds even needs to peel back meds with help from their doctor. Some children do not need the meds they are taking if the symptom being treated is not being manifested anymore. Pay attention to side effects. Notice if the meds effect the child's mood, gate, energy level, or awareness. Be sure you are going to the right doctor and that they know how all of the medications interact.
In the end, communication with your team matters. Remember that you are the expert on your child.
The one thing you can count on with individuals with dual diagnosis is that there will be constant change. When a change in health or behavior happens, be thorough. The new issue may be due to an underlying issue. It could be a stressor from school, a UTI, a change in thyroid levels, an ear infection, sensory processing difficulties, etc. Look at the antecedents to what is happening. Often the issues are due to a change in routine or a change to their environment. Did your family move a month before it started? Did the child's diet recently change?
The next step is to look at changing behavior by working with a social worker or behavioralist. Look at motivators, preferably non food motivators. Take one behavior at a time. One method is to give the child a sticker on a chart for doing the behavior correctly. Once the child gets a certain number of stickers, they can receive a reward or positive reinforcement. Try to filter stimulants that distract the child.
If caregivers are working with medications, try one at a time and take brief notes of how they react. Give each med at least two weeks. "Start low, go slow." Sometimes a child on multiple meds even needs to peel back meds with help from their doctor. Some children do not need the meds they are taking if the symptom being treated is not being manifested anymore. Pay attention to side effects. Notice if the meds effect the child's mood, gate, energy level, or awareness. Be sure you are going to the right doctor and that they know how all of the medications interact.
In the end, communication with your team matters. Remember that you are the expert on your child.
Wednesday, February 5, 2014
2014 Family Links Conference
Friday, February 28, 2014, 5:30 p.m. – 9:00 p.m.
Cost: Dinner & Keynote on Friday $20Cost: Keynote Only on Friday $10
Saturday, March 1, 2014, 8:00 a.m. – 4:00 p.m.
Cost: Saturday Only $20 (Lunch Included in Price)Location: Murray High School (5440 South State Street, Murray, Utah)
Cost: Friday and Saturday $35 (Discount Price)http://events.r20.constantcontact.com/register/event?oeidk=a07e8rzwzp0b26a1c29&llr=9rn6ucdab
Conferencia de Conexiones Familiares 2014
Haga click aqui para registrarse!
Sabado, 12 de Abril 2014Hora: 8:00 a.m. – 3:00 p.m.
Lugar: Murray High School (5400 Sur State St. Murray, Utah)Costo: $5.00 (Incluye Almuerzo)
‘Enfermedades Mentales y Conductas Desafiantes’
Orador Principal Dra. Alicia HoernerEn esta conferencia se presentarántalleres a donde a los padres puedan escoger de acuerdo a sus necesidades tales como:
- Necesidades Especificas de Aprendizaje
- Habilidades Sociales
- Plasticidad Cerebral
- Disciplina y Comportamiento
- Sección 504, la otra opción de la ley
- Dual Diagnosis como
- Enfermedades Mentales
- Educación Primero
También tendremos una amplia feria de exposiciones de recursos en la comunidad.
RegÃstrese lo más pronto posible llamando a los teléfonos (801)272-1051, (801)272-1067, o Araceli (801)949-6442
ADHD Training
Dates and times: The classes will be held on 7 consecutive Thursdays, beginning
Thursday, February 6, 2013 from 6:30 pm to 8:30 pm (1st class starts 15 min early)
Location: Roy High School, 2150 W. 4800 South, Roy, in the Media Center
Cost:
Limited scholarships are available for financial need, call Annette Houston, 801-452-4195.
Educators: In-service credit
To register: Call Renae 452-4256. Make checks to CHADD of Utah.
Saturday, December 14, 2013
Tuesday, October 22, 2013
Thursday, September 26, 2013
Events Tonight and Next Month!
Transitions Legal Guardian Workshop Tonight
Thursday, September 26, 6:30-8:30
Davis Vista Education Center
Primarily for ages 17+
Did you know that if you have a child with special needs that you may need to become their legal guardian either prior to or when they turn 18 years old? Find out why and when this is a good move. Fill out paperwork to become your own lawyer. A representative from a law firm will be present, offering information about representing children with disabilities.
SIBS DAY - A Workshop for Super Important Brothers and SistersSaturday, November 16, 2013
801.662.3701.
Thursday, September 26, 6:30-8:30
Davis Vista Education Center
Primarily for ages 17+
Did you know that if you have a child with special needs that you may need to become their legal guardian either prior to or when they turn 18 years old? Find out why and when this is a good move. Fill out paperwork to become your own lawyer. A representative from a law firm will be present, offering information about representing children with disabilities.
SIBS DAY - A Workshop for Super Important Brothers and SistersSaturday, November 16, 2013
10:00 am to 2:00 pm
Primary Children’s Outpatient Services at the Riverton Campus, 3rd Floor
#3 Yellow Entrance, Northwest Corner of Campus
Join us for SIBS Day — a workshop for brothers and sisters ages 5 to 17 who
have a sibling with a chronic medical condition or disability. This workshop
provides a place where children can express themselves, learn from others and
explore new ways to cope.
Early Bird Tuition is $5 (before 10/28/13). Regular Tuition is $10. Space is
limited and pre-registration is required. Registration closes 11/08/13 at 5:00 pm.
www.primarychildrens.org/sibs
For questions or more information please contact Family Support Services at
801.662.3701.
Awesome Links to IEP and 504 Information
We had a great support group last night discussing IEPs and 504s with our wonderful presenter, Roz Welch of the Utah Parent Center. Here are some very helpful resources and videos:
http://www.utahparentcenter.org/training/videos/
http://www.utahparentcenter.org/wp-content/uploads/2011/08/IEP_Parent_Handbook.pdf
http://www.utahparentcenter.org/resources/school-services/
http://www.utahparentcenter.org/training/videos/
http://www.utahparentcenter.org/wp-content/uploads/2011/08/IEP_Parent_Handbook.pdf
http://www.utahparentcenter.org/resources/school-services/
Thursday, September 5, 2013
Wednesday, August 28, 2013
Autism Insights from Temple Grandin
Friday, August 16, 2013, Temple Grandin graced attendants of the US Autism
and Asperger Association World Conference and Expo in Salt Lake City with her
unique outlooks on life with autism. Although Grandin continues to cope with
auditory processing disorder, she was extremely personable as she stood in a
crowded hallway with a massive line awaiting a chance to meet her and have
her sign copies of books she has written. As she signed books, she was
inquisitive as to the progress of loved ones with autism in a person's
family. She frequently broke eye contact, while listening intently to stories of individuals with autism.
Grandin's passionate sentiments and experiences in empowering young people with autism were obvious as she spoke to attendants at the conference. She spoke about how her mother taught her rules through chores, games and turn taking. Her mother would give her a choice to go work on a farm for the summer or to go for a couple of weeks. There was no option not to work, so Grandin learned to make a choice and accept responsibilities.
Emphatic that young people with autism need to be stretched, Grandin suggested many types of work opportunities comparable to a paper route. She said that getting a small, regular job early (about age thirteen) would teach a child to work, to be on time, and to communicate. There are many local opportunities, Grandin noted, such as walking a neighbor's dog, washing dishes in a restaurant kitchen, or cleaning a few rooms in a building. "Don't hold them back," Grandin emphasized. She said that she is seeing too many autistic young adults staying in their rooms, playing video games. Ways to prepare autistic young adults for the workforce can be done one small project at a time and by building a portfolio. She said to target the portfolio and get it into the right hands to mitigate the interview process, which is exactly what she did in her own career.
As one of Grandin's favorite examples of a young autistic entrepreneur, she shared a new business venture her nephew launched in New York City. The product...the poop briefcase. Grandin could hardly contain her laughter as she explained the product. She said that with the high rises in New York, many dog owners don't want to take their dogs all the way down to street level to let them do their business, so her nephew marketed training the dogs to go in a briefcase in the apartment, so that it could later be taken discretely down the elevator and disposed of later. Grandin continued giggling as she questioned why people didn't just use the Times and dump it down the shoot, while expressing how this creative business helped her nephew excel.
Acknowledging that many autistic children have a difficult time with sensory issues, Grandin cautioned parents and caregivers to be careful to not overwhelm them. The point is to stretch them, not to push them past their threshold, but to "stretch" them just beyond their comfort levels. Grandin pointed out that many autistic children have mild to severe sensory issues which must be addressed in order to acclimate to life's situations. She said that with sensory neurological problems, accommodations are essential and that sensory issues are neurological. The brain is processing something physiological, not just behavioral. The behavior is a manifestation of the physiological issue. There may be hidden painful medical problems for the nonverbal. In many individuals with autism, Grandin explained that the amygdala (fear center) of the brain is three times larger. Some of her suggestions included using pressure or weighted vests to help the nervous system, slow swinging to stimulate speech, singing-rather than talking, or trying one medication at a time to see what works best.
If a child has auditory detail or auditory processing disorder, there may be a greater ability to hear hard consonants. Her suggestion is to slow down. Emphasize and clearly dictate all of the hard consonants, so that the child can process them more easily. She also said that if a child has attention shifting slowness where they have a difficult time looking up and looking down between facial cues and body movement, social interactions may need to be taught. Grandin suggested that the best way to teach social "stuff" is to give the instruction, rather than saying no. "Say what the kid should be doing," Grandin instructed. Children with attention shifting slowness often experience visual images breaking up and fragmenting. Words on a page may vibrate. In this situation, she said to experiment with different backgrounds in the classroom or tinted glasses.
Along with sensory issues, Grandin said that learning styles need to be considered. She specified a few types of "thinkers" such as the photo realistic thinker, the pattern/music/math thinker, and the verbal thinker. She voiced concern that verbal thinkers are taking over the school system. Hands-on learning in the classroom teaches resourcefulness and problem solving, she said. Grandin said that the autistic mind sees the details and encouraged listeners to "fill up their minds with variety."
The audience had a chance to see first-hand how Grandin can be affected by auditory processing disorder as she was interviewed following her speech. As she answered questions about her childhood, her inventions, and gave additional tips to parents, staff at the conference attempted to move the podium so that it would not block the view of part of the attendants. Each time they shifted the podium back, the microphone was jostled and Grandin would turn her head to look over her shoulder. It must have happened six times, when finally, an exasperated Grandin inquired, "What are they doing?" After the situation was explained, she responded, "Well, why don't we just move our chairs forward instead?" The amused audience chuckled at her most logical response, while identifying with her perspective. Grandin, most definitely, shared her quick wit, her empowering ideas, and a reminder to look at life through a different lens.
Resources recommended by Temple Grandin:
www.khanacademy.org
www.udacity.com
Article Written by Jeanette Pascoe
Family Partner, Northern Utah Pediatrics
Families of Super Kids
Mother of a child with autism, epilepsy, and multiple disabilities
Grandin's passionate sentiments and experiences in empowering young people with autism were obvious as she spoke to attendants at the conference. She spoke about how her mother taught her rules through chores, games and turn taking. Her mother would give her a choice to go work on a farm for the summer or to go for a couple of weeks. There was no option not to work, so Grandin learned to make a choice and accept responsibilities.
Emphatic that young people with autism need to be stretched, Grandin suggested many types of work opportunities comparable to a paper route. She said that getting a small, regular job early (about age thirteen) would teach a child to work, to be on time, and to communicate. There are many local opportunities, Grandin noted, such as walking a neighbor's dog, washing dishes in a restaurant kitchen, or cleaning a few rooms in a building. "Don't hold them back," Grandin emphasized. She said that she is seeing too many autistic young adults staying in their rooms, playing video games. Ways to prepare autistic young adults for the workforce can be done one small project at a time and by building a portfolio. She said to target the portfolio and get it into the right hands to mitigate the interview process, which is exactly what she did in her own career.
As one of Grandin's favorite examples of a young autistic entrepreneur, she shared a new business venture her nephew launched in New York City. The product...the poop briefcase. Grandin could hardly contain her laughter as she explained the product. She said that with the high rises in New York, many dog owners don't want to take their dogs all the way down to street level to let them do their business, so her nephew marketed training the dogs to go in a briefcase in the apartment, so that it could later be taken discretely down the elevator and disposed of later. Grandin continued giggling as she questioned why people didn't just use the Times and dump it down the shoot, while expressing how this creative business helped her nephew excel.
Acknowledging that many autistic children have a difficult time with sensory issues, Grandin cautioned parents and caregivers to be careful to not overwhelm them. The point is to stretch them, not to push them past their threshold, but to "stretch" them just beyond their comfort levels. Grandin pointed out that many autistic children have mild to severe sensory issues which must be addressed in order to acclimate to life's situations. She said that with sensory neurological problems, accommodations are essential and that sensory issues are neurological. The brain is processing something physiological, not just behavioral. The behavior is a manifestation of the physiological issue. There may be hidden painful medical problems for the nonverbal. In many individuals with autism, Grandin explained that the amygdala (fear center) of the brain is three times larger. Some of her suggestions included using pressure or weighted vests to help the nervous system, slow swinging to stimulate speech, singing-rather than talking, or trying one medication at a time to see what works best.
If a child has auditory detail or auditory processing disorder, there may be a greater ability to hear hard consonants. Her suggestion is to slow down. Emphasize and clearly dictate all of the hard consonants, so that the child can process them more easily. She also said that if a child has attention shifting slowness where they have a difficult time looking up and looking down between facial cues and body movement, social interactions may need to be taught. Grandin suggested that the best way to teach social "stuff" is to give the instruction, rather than saying no. "Say what the kid should be doing," Grandin instructed. Children with attention shifting slowness often experience visual images breaking up and fragmenting. Words on a page may vibrate. In this situation, she said to experiment with different backgrounds in the classroom or tinted glasses.
The audience had a chance to see first-hand how Grandin can be affected by auditory processing disorder as she was interviewed following her speech. As she answered questions about her childhood, her inventions, and gave additional tips to parents, staff at the conference attempted to move the podium so that it would not block the view of part of the attendants. Each time they shifted the podium back, the microphone was jostled and Grandin would turn her head to look over her shoulder. It must have happened six times, when finally, an exasperated Grandin inquired, "What are they doing?" After the situation was explained, she responded, "Well, why don't we just move our chairs forward instead?" The amused audience chuckled at her most logical response, while identifying with her perspective. Grandin, most definitely, shared her quick wit, her empowering ideas, and a reminder to look at life through a different lens.
Resources recommended by Temple Grandin:
www.khanacademy.org
www.udacity.com
Article Written by Jeanette Pascoe
Family Partner, Northern Utah Pediatrics
Families of Super Kids
Mother of a child with autism, epilepsy, and multiple disabilities
Thursday, August 22, 2013
New Breastfeeding Clinic in Northern Utah
A new breastfeeding consultation clinic has recently opened. Take advantage of a trained professional to improve your breastfeeding experience. Sometimes a lactation consultant is exactly who can help you make it work, especially when this professional has done it herself six times. She even helps moms navigate g-tube feeding and nutritional support for children with special needs.
Wednesdays 10 am-12 noon at Arrivals Birth Suite
Contact: Karin Hardman, IBCLC, RLC belcantomom@gmail.com 801.980.1129 $20 per session/$5 with Medicaid card
Worried about Breastfeeding?
Drop-in Group Clinic
Come get breastfeeding help from an experienced professional IBCLC. This is for moms with mild/moderate breastfeeding issues. In this clinic, you can assess weight gain, learn baby behaviors, get tips, and meet with other breastfeeding mothers.
Wednesdays 10 am-12 noon at Arrivals Birth Suite
Contact: Karin Hardman, IBCLC, RLC belcantomom@gmail.com 801.980.1129 $20 per session/$5 with Medicaid card
Monday, July 29, 2013
Come Join Us for the Salt Lake County SSI Workshop!
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